we are stuck at the ronald mcdonald house, I am breaking yet another promise to gage...we cant do anything. and I was told the ronald mcdonald house would help us with gas and stuff to do...nope...they cant now. something about how they paid for all the families to go to the zoo on thursday and the mall on saturday. I shouldve never came to minnesota, its not like they are helping him anyway. I hate this
the social workers here have nothing to help me...I have nothing left. I am crying and stressed.
Gage is bored and just begging to go do something. I can't afford a pool, can't take him to the park or he'll get worst, can't even afford to go to wal-mart. We have food and the ronald mcdonald house, nothing to do but watch tv. Why werent we here last week? atleast my kids couldve went to the zoo and stuff for free.
There are people here from china, jamaica, and canada...some from wisconsin and new york we have met.
well I dont have anything else to say, I am so stressed...
Hope everyone else is better.
Tuesday, June 8, 2010
Monday, June 7, 2010
Rough times
Well, we are at the ronald mcdonald house in Rochester. Times are not fun...we are broke, I overdrew my account buying medicine for gage (because insurance wouldn't cover it in MN) that we can't use...ya I am not joking. I have barely any gas and now we are waiting here until our friday appointment with GI. They now think gage is having stomach problems also.
I am VERY stressed. I dont have any money to buy diapers or food really and I wont have any coming in when we get home...Gage is very woried and paige is orhnery as ever!
So where do we stand. I had hoped that they would retest his allergies to see if we had grown out of anything and I was told "there would be no testing. why? oh because his IgE is well over 6 thousand. and that means that he would test positive for anything we tested him for. " so maybe try a soy free diet ??? WHAT! how the heck do you eliminate SOY...seriously go to the store and check it out NOTHING packaged or processed...I am racking my brain. I was told keep the epipen close, hope he doesnt have the stomach issue, asthmas as good as its going to be. yep no help AT ALL. Oh and they wanted to send him to a doc for his coping skills, anxiety and just to generally help him understand this all...so I am not hearing I wanna die, why am I like this, why are you not finding a way to help me, why cant I be normal, whats wrong with me....imagine your child saying that and then think of how it would feel...oh wait we cant get help with that either ...why, you guessed it INSURANCE won't pay. if I want to put down a large deposit, I can do that...guess what I would if I could!
I am just crying and beside myself.
I am VERY stressed. I dont have any money to buy diapers or food really and I wont have any coming in when we get home...Gage is very woried and paige is orhnery as ever!
So where do we stand. I had hoped that they would retest his allergies to see if we had grown out of anything and I was told "there would be no testing. why? oh because his IgE is well over 6 thousand. and that means that he would test positive for anything we tested him for. " so maybe try a soy free diet ??? WHAT! how the heck do you eliminate SOY...seriously go to the store and check it out NOTHING packaged or processed...I am racking my brain. I was told keep the epipen close, hope he doesnt have the stomach issue, asthmas as good as its going to be. yep no help AT ALL. Oh and they wanted to send him to a doc for his coping skills, anxiety and just to generally help him understand this all...so I am not hearing I wanna die, why am I like this, why are you not finding a way to help me, why cant I be normal, whats wrong with me....imagine your child saying that and then think of how it would feel...oh wait we cant get help with that either ...why, you guessed it INSURANCE won't pay. if I want to put down a large deposit, I can do that...guess what I would if I could!
I am just crying and beside myself.
Monday, January 4, 2010
New Year
Well, lets see many positive and negative things happened in 2009, thank you to the friends that supported us through the good and the bad.
Paige is growing into a wonder adorable little angel but she is extremely mischievous! She is always trying to keep up with Gage and into anything but her toys! lol
Gage is having a rough year...well hopefully ended one. We are fighting some pretty bad flairs and infections. We have had antibiotics all but 3 weeks of the last two months. And now we are balding...that one is slightly puzzling but hope to get to docs soon. I have now officially made it though our savings...trying to keep him healthy...its not working. The doctor here thinks he has Hyper IGE. Another stressful condition that includes all he already has going on, plus a few others.
Brandon and I are really trying to figure out what to do, we are getting married, but cant afford much. So...small or no wedding in the books, would like to at least have a reception. After everything we have been through I hoped it would be a happy occassion. Well it will be someday!
We are looking for a new house this one is not made for us and I honestly think it is worst than living in the ghetto that we used to live in. Once Brandon finds a job we will be able to get back on our feet...Hope 2009 came to a good close for you all and new blessings in the new year!
LOVE YOU ALL!
Courtney and Kids
Paige is growing into a wonder adorable little angel but she is extremely mischievous! She is always trying to keep up with Gage and into anything but her toys! lol
Gage is having a rough year...well hopefully ended one. We are fighting some pretty bad flairs and infections. We have had antibiotics all but 3 weeks of the last two months. And now we are balding...that one is slightly puzzling but hope to get to docs soon. I have now officially made it though our savings...trying to keep him healthy...its not working. The doctor here thinks he has Hyper IGE. Another stressful condition that includes all he already has going on, plus a few others.
Brandon and I are really trying to figure out what to do, we are getting married, but cant afford much. So...small or no wedding in the books, would like to at least have a reception. After everything we have been through I hoped it would be a happy occassion. Well it will be someday!
We are looking for a new house this one is not made for us and I honestly think it is worst than living in the ghetto that we used to live in. Once Brandon finds a job we will be able to get back on our feet...Hope 2009 came to a good close for you all and new blessings in the new year!
LOVE YOU ALL!
Courtney and Kids
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