Well, we are at the ronald mcdonald house in Rochester. Times are not fun...we are broke, I overdrew my account buying medicine for gage (because insurance wouldn't cover it in MN) that we can't use...ya I am not joking. I have barely any gas and now we are waiting here until our friday appointment with GI. They now think gage is having stomach problems also.
I am VERY stressed. I dont have any money to buy diapers or food really and I wont have any coming in when we get home...Gage is very woried and paige is orhnery as ever!
So where do we stand. I had hoped that they would retest his allergies to see if we had grown out of anything and I was told "there would be no testing. why? oh because his IgE is well over 6 thousand. and that means that he would test positive for anything we tested him for. " so maybe try a soy free diet ??? WHAT! how the heck do you eliminate SOY...seriously go to the store and check it out NOTHING packaged or processed...I am racking my brain. I was told keep the epipen close, hope he doesnt have the stomach issue, asthmas as good as its going to be. yep no help AT ALL. Oh and they wanted to send him to a doc for his coping skills, anxiety and just to generally help him understand this all...so I am not hearing I wanna die, why am I like this, why are you not finding a way to help me, why cant I be normal, whats wrong with me....imagine your child saying that and then think of how it would feel...oh wait we cant get help with that either ...why, you guessed it INSURANCE won't pay. if I want to put down a large deposit, I can do that...guess what I would if I could!
I am just crying and beside myself.
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