stressed out!

Ok, so I fell at work, can't work for a few days. Real great considering I just recieved a letter stating that we no longer get the rent assistance that we were getting, a wopping $50 but hey that was groceries. so now, we won't have the money for rent or food...wonderful huh. I HATE the way the government is set up. I HATE OTTUMWA HOUSING ATHORITY... I HATE unemployment.
I need to face facts..Gage is looking really bad today. We are never going to get him help, never ever going to have a house and a yard and a garage like we want, It is going to be FOREVER before we get a car that is good enough to get to the hospital. I GIVE UP. I'm not getting gage's full ssi, not getting my full childsupport, and now I have a huge er bill to pay. I don't make much money and only get partial unemployment but hey guess what...that means I don't deserve help. I do'nt know what to say...I can't think of one positive...I have two children that because of a screwed up government I can't get anything for. What a waste of a nice day.

FAAN night at the ballpark.

Well, we had a blast at the ball park and man are we exhausted! We left before the game was over and still didn't get home til midnight! But it was great to Finally meet the Taylor's after all the time that we have connected online. I am now even more dedicated to getting Gage healed as I watched how much fun he had last night and pray to find the support we need along the way.

Gage's Video

Ok Laurie, I took your lead. I am giving this to a few groups to show what is going on with Gage...improve awareness. I hope it gets the word out!

ideas ideas ideas

Ok. so if you wanna help with the benefit I may need it! Well I recieved an email and we can use the high school cafeteria...yeah! It's really big and really nice. I am going to start calling about food today. i really don't know where to start or who to contact but here we go! The doctors nurse that was extremely rude to me said she mailed his papers for the hospital to me, haven't got them yet so hopefully they are taken care of. and Elaine, the congressmans' assistant is checking into the insurance thing. and Brandon is up in arms...about going or me taking the kids and him not seeing paige that long...I just want him to go and help me, support us, and learn that this stuff is serious...i really think he is like most of the rest of the world that thinks allergies are just something, nothing serious. Laurie, made a slide that said it takes a whole village to raise a child with allergies... I SO agree! I love when people keep saying to me that they can't believe that it is so hard or they just don't know how you do it...i do what Ihave to...it isn't easy and I don't always or maybe ever do anything right. But I know in my heart that if I just keep plugging along, eventually Gage will get better, we will have the things we want and need, a house good car, and maybe someday my kids will have all the advantages that I pray for for them. But I won't live like this forever...it will get better...this benefit is a start..a step in the right direction for Gage. I know that National Jewish can help him, I have prayed and prayed for it.

if you have any ideas...let me know!

Hoppy Easter!

Well we made it thru easter...the bunny almost didn't make it...procrastinator! lol. I had to work so Brandon kept the kids at home...good thing because Gage is majorly flaired and we all have terrible soar throats and coughs. I am meeting with the superintendant assistant tomorrow about getting gage in to another school...i relaly would like it if he liked school again. I think Eisenhower will work alot better with us. I hope at least I have friends with kids there and if I get in a bind he can go to a friends. Brandon and I are starting to get better...i am really happy about that. BIG stress relief.

So NEWS of the century! Congressman Lobesac's assistant that represents Ottumwa came to my house on Friday to discuss Gage's case. She's going to see if there is anyway that the insurance can cover it and if not...why. Not just a oh sorry he has to suffer thing. Time will tell. in the mean time I am still going to raise as much as possible and if we by miracle get help...I will atleast be able to get whatever supplies he needs....

well i suppose I will add more later..ttys

thursday huh? thank god tomorrow is friday!

well gage's skin looks TERRIBLE. I wrapped him tonight as well as his neck...he was mad and doesn't like having his neck wrapped says it chokes him. My house is a mess! and i am exhausted. I worked tonight and my feet are killing me. Paige still has a fever and is sick with a terrible cough, Gage is sick too. buy they still cuddled and fell asleep together tonight...it was soooo adorable...gage said he needed someone to cuddle and paige just climbed right up on his lap.

I really wanted to go up and see our friends tomorrow to get away but nope...sick kids put a dent in that. but thats ok...i don't have any money anyway... I am going to really really try tomorrow to get some things going as far as a fundraiser...somehow. I just need things to get better for us. I am also going to look for a different house for us and a decent running car.

well hope all is well.
ttys Courtney and kids

unbelievable!

Ok....so as i am praying for a miracle, i am now praying for the strength to deal with the ottumwa school district and believe me i have a few choice words for them. I am sorry I am not making excuses... but I have a little boy that is up half the night from itching and sweating that wears rolls of wet gauze to bed everynight...can you imagine sleeping wet? I would hate it and know that I don't have the strength to stand it. The boy is laughed and poked fun at, thinks that he isn't normal and god hates him...and to top it off is worried that I will have to go to jail! NO JOKE!

I receieved a call last week that the school wants me to meet with the truancy officer about Gage missing school...well ok fine. I will go listen to the crap they tell everyone even tho i know that he isn't late or misses because we are lazy or out having fun...but because he is itchy, bleeding, sick, in the hospital whatever. I am SO PISSED. lol then i get letter when I get home from work today stating that we are being reviewed by the county attorney and I could face jail time and fines...can you believe that! I mean COME ON they have doc notes and the docs are sick of writing notes..the mayo doctors think that this is rediculous and they shouldn't have to to write a note for every illness or absence due to his illness...they say obviously they know whats going on with him. i AGREE...this is rediculous...please make things harder on my family aren't things rough enough....i am looking into different schools...don't know how that will work but gotta do something I don't deserve to be harrassed and it isn't like they keep him safe there anyway.

so god never gives you more than you can handle...oh my that is NOT TRUE... i am sooooo angry.

The Taylors post about the Game.

Gage and I will be attending. Maybe some of our friends will too.


Food Allergy Awareness night at the ball park! Please join the Taylor family at the Cedar Rapids Kernels vs. Clinton Lumber Kings on :

Tuesday April 21st
Gates Open at 5:30 PM
Admission is $6.50 until 4-20-09 Price at the gate $9.00


The Taylor family will be manning the FAAN table again this year. Stop by say hi! Get some info and learn more about food allergies. And for goodness sake ENJOY THE GAME!

- No products containing peanuts/tree nuts will be served at the concession stands
- The stadium will be cleaned of any remnants of nut residue before the game
- Alternative snacks will be served in the stands during the game

To purchase tickets call the Kernels Ticket Office at 896-7560 or in person the Ticket Office hours are: 10 am to 5 pm M-F, 10 am to 2 pm Sat. The ticket office opens March 16th.

A special thank you to the entire Kernels organization for continuing to support this great event. Last year we had so many parents come up to us and say this is the only professional baseball game they have ever been able to go to as a family. Please support this worth while event so the Kernels continue to allow us this family activity every year! We are hoping for a sell out this year, help us achieve that goal!

Whats new #1

Ok so here is the actual first post of what going on!

Paige...oh my she is totally growing too fast! We are getting our first tooth...slobering and fever ewww! poor baby. She's pulling up on everything...and i know she'll be walking soon!

Gage... still doesn't like school. I promised him next year we'd try a different one. I made a mayo appt for in two weeks so hopefully i can save up some money to go...my mom will have to take us because our car won't make it up there and back. The doctors want him up there now...but we can't. Gage's skin is really not good...but he is absolutely obsessed with scratching I can't keep him from doing it. As for the asthma, we are having attacks at night...running out of inhalers and last night we had to get him a neb treatment in the middle of the night because he was coughing and gasping for air.....sometimes i don't know if he is faking it or if its real but its extremely scary as a parent not knowing if he's just saying it or if its real. but i know we are using the inhaler way way way too much...not good for his lungs.
As for National Jewish, we still can't get it passed through insurance...i don't understand why they just don't do the single case agreement and get him help... I pray all the time...even if they'd cover the 15000 we need and then I make payments on the rest...or what happens if we go and the bill isn't the 25000 they said and its more like 60000...then what...plus food, travel, and lodging, missed work... I pray so hard for help...I just don't think its going to happen. I AM going to start a fundraiser tho...somehow! I have a few people that say they will help.

as for the parents...i am not sure if brandon and I are going to be together or if we are done but I am worried that if we split up Paige and Gage will suffer.
I am waitressing...and praying to get on my feet enough that I can build up a savings for a house and a decent car. i guess time will tell. I wish extreme home makeover would come help us build a house for gage...not the ones like on tv a simple cheap 4 bedroom with 2 bathrooms and a big yard or country...thats a great dream for my kids...lol well i WILL have that someday...just not with that kind of help! Hope all is well...i will probably be posting some things today. ttys.

First post!

Ok, we will see if we can figure this out. I am starting this blog to keep everyone up to date on our daily drama! no really just kidding but to update all on what is new and what is going on with us. I will start tomorrow by making a post about Gage and one about Paige. Ttys!